PROM/PUL

The DMD Upper Limb PROM is a Patient Reported Outcome Measure Upper Limb for patients with Duchenne Muscular Dystrophy.

  • DMD UL PROM is a patient reported outcome measure specifically designed to document upper limb performance in daily life in boys and young men with dystrophinopathies, from childhood to adulthood.
  • The questionnaire is recommended from 7 years of age onwards.
  • It can be completed by the individual himself or his parent/caregiver.

We recommend having it completed by the parent/caregiver up to the age of 16 years.

For more information on the conditions to use the PULPROM please contact:

Mirjam Franken
Duchenne Parent Project www.duchenne.nl
World Duchenne Organization www.worldduchenne.org