The DMD Upper Limb PROM is a Patient Reported Outcome Measure Upper Limb for patients with Duchenne Muscular Dystrophy.

  • DMD UL PROM is a patient reported outcome measure specifically designed to document upper limb performance in daily life in boys and young men with dystrophinopathies, from childhood to adulthood.
  • The questionnaire is recommended from 7 years of age onwards.
  • It can be completed by the individual himself or his parent/caregiver.

We recommend having it completed by the parent/caregiver up to the age of 16 years.

Download here the application form for use of the DMD Upper Limb PROM and mail this form after completion to

For more information on the conditions to use the PULPROM please contact:
Mirjam Franken

Parent Project Productions